The Spina Bifida Association: Empowering Lives Through Advocacy, Education, and Support

The Spina Bifida Association: Empowering Lives Through Advocacy, Education, and Support

The Spina Bifida Association (SBA) is a national nonprofit organization dedicated to improving the lives of individuals affected by spina bifida through education, advocacy, research, and support services. Since its founding in 1973, SBA has become the leading organization for individuals with spina bifida and their families, providing essential resources, support, and advocacy to ensure that those affected by this condition can live full and fulfilling lives. Spina bifida is the most common permanently disabling birth defect in the United States, affecting thousands of individuals and families nationwide. SBA’s mission is to enhance the lives of those living with spina bifida, to promote prevention, and to empower individuals to reach their full potential.

Spina bifida is a neural tube defect that occurs when the spinal column does not close completely during early fetal development. This condition can result in varying degrees of physical and intellectual disabilities, depending on the severity of the defect. While medical advancements have improved the outcomes for individuals with spina bifida, many still face significant challenges, including mobility issues, learning difficulties, and ongoing medical needs. SBA is committed to addressing these challenges through a comprehensive approach that includes education, advocacy, research, and support services.

This article provides an in-depth exploration of the Spina Bifida Association, examining its history, mission, key programs, advocacy efforts, and the profound impact it has had on the lives of individuals with spina bifida. We will also discuss the organization’s role in raising public awareness, shaping public policy, and its vision for the future of spina bifida care and support in the United States.

The Founding and Early History of the Spina Bifida Association

The Origins of SBA: A Response to a Growing Need

The Spina Bifida Association was founded in 1973 by a group of concerned parents and healthcare professionals who recognized the need for a national organization dedicated to supporting individuals with spina bifida and their families. At the time, there was a lack of resources, support, and information available for those affected by the condition, and the founding members were determined to change this. They envisioned an organization that would provide comprehensive support services, promote public awareness, and advocate for policies that would improve the lives of individuals with spina bifida.

The organization’s early efforts focused on raising awareness about spina bifida and providing support to families who were navigating the challenges of the condition. SBA quickly gained a reputation as a trusted source of information and support, and its membership grew rapidly as more families and healthcare providers became aware of the organization’s work. In its early years, SBA also began to develop educational materials and resources that were distributed to families, healthcare providers, and schools, helping to ensure that individuals with spina bifida had access to the information they needed to manage their condition.

Early Advocacy and Education Efforts

From its inception, SBA has been deeply committed to advocacy and education. The organization recognized that individuals with spina bifida often faced significant barriers to accessing healthcare, education, and other essential services, and it set out to address these challenges through a combination of public policy advocacy and educational initiatives.

One of SBA’s early successes was its role in advocating for the inclusion of spina bifida as a qualifying condition for Social Security Disability Insurance (SSDI). This achievement was a critical milestone for the organization, as it ensured that individuals with spina bifida would have access to financial support and healthcare services through the SSDI program. SBA also began working with schools and educational institutions to promote inclusive education practices and to ensure that students with spina bifida had access to the accommodations and support they needed to succeed in school.

In addition to its advocacy efforts, SBA also focused on educating the public about spina bifida and raising awareness about the condition. The organization developed a wide range of educational materials and resources, including brochures, fact sheets, and training programs, that were distributed to healthcare providers, educators, and community organizations. These materials helped to increase understanding of spina bifida and to promote a more inclusive and supportive environment for individuals with the condition.

Growth and Expansion: Building a National Network

As SBA grew, the organization expanded its reach by establishing a national network of support and advocacy programs. This expansion allowed the organization to provide services to a larger number of individuals with spina bifida and to have a greater impact on the spina bifida community as a whole.

One of the key elements of this expansion was the development of the Spina Bifida Resource Network, a comprehensive resource hub that provides information, support, and referrals to individuals with spina bifida, their families, and healthcare providers. The Resource Network quickly became an invaluable resource for the spina bifida community, offering a wide range of educational materials, support services, and connections to local resources.

SBA also expanded its support programs, establishing a network of local chapters across the United States. These chapters provide individuals with spina bifida and their families with access to support groups, educational workshops, and community events, helping to create a strong and supportive community for those affected by the condition. The establishment of local chapters also allowed SBA to have a greater presence in communities across the country and to provide more personalized support to individuals and families.

SBA's National Impact

Over the decades, the SBA has played a crucial role in raising awareness about spina bifida and advocating for policies that improve the lives of those affected by the condition. The organization's work has led to significant advancements in medical care, accessibility, and quality of life for people with spina bifida. Today, the SBA continues to be a leader in the field, providing essential support and resources to individuals and families across the nation.

The Mission and Core Values of the Spina Bifida Association

Mission Statement

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by spina bifida. The organization aims to improve the quality of life for individuals with spina bifida through education, advocacy, research, and support services. By providing comprehensive resources and support, the SBA empowers individuals with spina bifida to achieve their full potential and lead fulfilling lives.

Vision for the Future

The SBA envisions a world where everyone with spina bifida has the opportunity to thrive. This includes access to high-quality medical care, inclusive educational opportunities, and a society that understands and accommodates the needs of individuals with spina bifida. The SBA's vision also includes advancing research that leads to better treatments and ultimately, a cure for spina bifida.

Empowering Individuals with Spina Bifida

At the heart of SBA’s mission is a commitment to empowering individuals with spina bifida to live full, independent lives. The organization believes that individuals with spina bifida should have the resources, support, and opportunities they need to achieve their personal goals and to thrive in their communities. SBA works to empower individuals with spina bifida by providing them with access to education, support, and advocacy resources that help them navigate the challenges they face and take control of their lives.

Promoting Education and Awareness

Education is a central component of SBA’s mission. The organization is dedicated to providing individuals with spina bifida, their families, and healthcare providers with accurate, up-to-date information about spina bifida, healthcare, and support services. SBA’s educational initiatives are designed to help individuals with spina bifida better understand their condition, make informed decisions about their care, and access the resources they need to live independently.

In addition to its educational efforts, SBA is also committed to raising public awareness about spina bifida. The organization works to challenge stereotypes and misconceptions about spina bifida, to promote understanding and acceptance, and to ensure that individuals with spina bifida are fully included in all aspects of society.

Providing Comprehensive Support Services

SBA recognizes that living with spina bifida can be challenging, and the organization is committed to providing comprehensive support services to individuals with spina bifida and their families. These services include support groups, educational resources, and referrals to local and national resources. SBA’s support services are designed to help individuals with spina bifida navigate the physical, emotional, and practical challenges they face, and to provide them with the tools and resources they need to live full, independent lives.

Advocating for the Spina Bifida Community

Advocacy is a core component of SBA’s mission. The organization works to influence public policy at the local, state, and national levels, advocating for policies that improve access to healthcare, education, and support services for individuals with spina bifida. SBA’s advocacy efforts are focused on ensuring that individuals with spina bifida have the same rights and opportunities as everyone else, and that they are fully included in all aspects of society.

Building a Supportive and Inclusive Community

SBA is committed to building a supportive and inclusive community for individuals with spina bifida and their families. The organization believes that no one should have to face the challenges of spina bifida alone, and it works to create a community where individuals with spina bifida can connect with one another, share their experiences, and find support. SBA’s community-building efforts include support groups, educational events, and online forums that provide individuals with spina bifida and their families with a safe and supportive space to connect with others who understand what they are going through.

Key Programs and Services of the Spina Bifida Association

The Spina Bifida Resource Network: A Comprehensive Resource for Individuals with Spina Bifida

The Spina Bifida Resource Network is one of SBA’s flagship initiatives, providing a wide range of resources, support services, and referrals to individuals with spina bifida, their families, and healthcare providers. The Resource Network is designed to be a one-stop shop for individuals with spina bifida, offering them access to the information and resources they need to live independently and thrive.

Purpose and Goals

The primary goal of the Spina Bifida Resource Network is to empower individuals with spina bifida and their families by providing them with the information and support they need to navigate the challenges associated with the condition. This includes access to educational materials, connections to local support groups, and referrals to medical professionals who specialize in spina bifida care.

What the Spina Bifida Resource Network Offers

The Spina Bifida Resource Network offers a comprehensive range of resources, including educational materials on spina bifida, healthcare, and assistive technology; information on healthcare and insurance options; and referrals to local support services and resources. The Resource Network also provides individualized support and guidance to individuals with spina bifida, helping them navigate the challenges they face and access the resources they need.

The Resource Network’s educational materials are designed to be accessible and informative, offering practical advice and information that individuals with spina bifida can use to make informed decisions about their care. The Resource Network also offers online resources, including webinars, podcasts, and articles, that provide up-to-date information on a wide range of topics related to spina bifida.

Impact of the Spina Bifida Resource Network

The Spina Bifida Resource Network has had a profound impact on the lives of individuals with spina bifida and their families. The Resource Network’s comprehensive range of resources and support services has helped countless individuals navigate the challenges of spina bifida and access the care and support they need. The Resource Network’s emphasis on providing accurate, up-to-date information has also helped to empower individuals with spina bifida to take control of their lives and to advocate for their needs.

The Walk-N-Roll for Spina Bifida: Raising Funds and Awareness

The Walk-N-Roll for Spina Bifida is another key initiative of SBA, bringing together individuals with spina bifida, their families, and supporters to raise funds and awareness for spina bifida. The event is held annually in cities across the United States and has become one of the largest and most successful fundraising events for spina bifida advocacy and support.

Objectives of Walk-N-Roll

The primary objectives of Walk-N-Roll for Spina Bifida are to raise public awareness about spina bifida, generate funds to support SBA's programs and services, and build a sense of community among individuals with spina bifida and their families. The funds raised through Walk-N-Roll events support national and local SBA programs, including advocacy efforts, educational resources, and support services.

What the Walk-N-Roll for Spina Bifida Offers

The Walk-N-Roll for Spina Bifida is a nationwide event that raises funds for SBA’s programs and initiatives, as well as for local organizations that support individuals with spina bifida. The event is open to people of all ages and abilities and typically features a walk or roll, as well as a variety of activities and resources for participants.

The Walk-N-Roll for Spina Bifida is more than just a fundraising event—it’s a celebration of the spina bifida community. Participants walk or roll alongside family members, friends, colleagues, and other supporters, creating a sense of camaraderie and shared purpose. The funds raised through the Walk-N-Roll for Spina Bifida support SBA’s education, advocacy, and support programs, helping to improve the lives of individuals with spina bifida.

Impact of the Walk-N-Roll for Spina Bifida

The Walk-N-Roll for Spina Bifida has had a significant impact on the spina bifida community. The event has raised millions of dollars for SBA’s programs and initiatives, making a significant impact on the organization’s ability to provide education, support, and advocacy to individuals with spina bifida. The Walk-N-Roll for Spina Bifida has also played a critical role in raising public awareness about spina bifida and in fostering a sense of community among participants. For many individuals with spina bifida, participating in the Walk-N-Roll for Spina Bifida is a powerful reminder that they are not alone in their journey.

SBA National Conference: A Gathering of the Spina Bifida Community

The SBA National Conference is an annual event that brings together individuals with spina bifida, their families, and supporters for a weekend of education, networking, and advocacy. The conference is one of the largest gatherings of the spina bifida community in the United States and offers participants the opportunity to connect with others, learn from experts, and advocate for change.

What the SBA National Conference Offers

The SBA National Conference features a wide range of activities and events, including educational workshops, keynote speakers, an exhibit hall showcasing the latest in healthcare and assistive technology, and social events. The conference is designed to provide participants with the opportunity to learn about the latest developments in spina bifida care, to connect with others who share similar experiences, and to advocate for the needs of the spina bifida community.

The conference also offers participants the opportunity to participate in advocacy activities, including meetings with policymakers and legislators. These activities provide participants with the opportunity to raise their voices and to advocate for policies that support individuals with spina bifida.

Impact of the SBA National Conference

The SBA National Conference has had a profound impact on the spina bifida community. The event provides individuals with spina bifida and their families with the opportunity to connect with others who understand their experiences, to learn about the latest developments in spina bifida care, and to advocate for their needs. The conference has also helped to raise awareness about spina bifida and to promote greater understanding and acceptance of individuals with spina bifida.

Key Legislative Victories

Over the years, the SBA has achieved several key legislative victories that have improved the lives of individuals with spina bifida. One significant achievement was the inclusion of spina bifida in the list of conditions covered by the Social Security Administration's Compassionate Allowances program, which helps individuals with severe disabilities receive expedited access to Social Security benefits.

Ongoing Advocacy Efforts

The SBA continues to advocate for the rights of individuals with spina bifida, focusing on issues such as access to comprehensive healthcare, inclusive education, and employment opportunities. The organization also works to ensure that new policies and legislation consider the unique needs of the spina bifida community.

Advocacy and Public Policy: Raising the Voice of the Spina Bifida Community

Advocacy is a central component of SBA’s mission, and the organization is dedicated to advocating for the rights and inclusion of individuals with spina bifida. SBA works to influence public policy at the local, state, and national levels, advocating for policies that improve access to healthcare, education, and support services for individuals with spina bifida.

Public Policy Advocacy

SBA’s public policy advocacy efforts are focused on promoting policies that support individuals with spina bifida and their families. The organization advocates for increased access to healthcare, including the inclusion of spina bifida-related treatments and services in health insurance coverage, as well as for policies that promote accessibility and inclusion for individuals with spina bifida.

One of SBA’s key advocacy priorities is ensuring that individuals with spina bifida have access to the care and services they need. The organization advocates for policies that promote access to specialized healthcare, support services, and disability-related accommodations. SBA also works to raise awareness about the importance of early intervention and treatment, as well as the need for ongoing support and care for individuals with spina bifida.

Raising Public Awareness

Raising public awareness about spina bifida is another important component of SBA’s work. The organization works to educate the public about the challenges faced by individuals with spina bifida and to promote greater understanding and acceptance of these conditions. SBA’s public awareness campaigns are designed to change public perceptions of spina bifida and to highlight the strength, resilience, and achievements of individuals living with spina bifida.

SBA’s public awareness efforts include events such as the Walk-N-Roll for Spina Bifida, which features a variety of activities and campaigns aimed at raising awareness about spina bifida and promoting support for the spina bifida community. The organization also engages with the media, social media, and other platforms to share stories and information about spina bifida and to promote its mission.

Collaborating with Advocacy Groups

SBA collaborates with other disabled advocacy groups and nonprofit organizations to advance its advocacy goals and to amplify the voice of the spina bifida community. The organization works with partners to develop and promote policies that support individuals with spina bifida and their families, and to raise awareness about the challenges faced by this community.

SBA’s collaborations with advocacy groups allow the organization to leverage its resources and to have a greater impact on public policy and public awareness. These partnerships are critical to advancing SBA’s mission and to improving the lives of individuals with spina bifida.

Educational Resources and Support Programs

SBA is committed to providing individuals with spina bifida and their families with the information and support they need to navigate the challenges of living with spina bifida. The organization offers a wide range of educational resources, support programs, and services designed to empower individuals and families and to help them live fuller, more independent lives.

Educational Resources

SBA provides a wealth of educational resources to individuals with spina bifida, their families, and healthcare providers. These resources include guides on specific aspects of spina bifida, information on treatment options and assistive technologies, and tips for managing daily life with spina bifida. SBA’s educational resources are designed to be accessible and informative, offering practical advice and information that individuals and families can use to make informed decisions about their care.

In addition to its printed and online resources, SBA offers educational webinars and workshops on a wide range of topics related to spina bifida. These events provide individuals with spina bifida, their families, and healthcare providers with up-to-date information on the latest research, treatments, and best practices in spina bifida care.

Support Programs

SBA’s support programs are designed to provide individuals with spina bifida and their families with the support they need to navigate the challenges of living with spina bifida. The organization offers a wide range of support services, including peer support groups, counseling services, and assistance with accessing community resources.

SBA’s support programs are focused on empowering individuals with spina bifida to live as independently as possible and on providing families with the tools and resources they need to care for their loved ones. The organization’s support programs are designed to be flexible and responsive to the needs of individuals and families, offering a wide range of services and resources that can be tailored to meet their unique needs.

Peer Support Networks

SBA’s peer support networks provide individuals with spina bifida and their families with the opportunity to connect with others who share similar experiences. These networks offer a valuable source of emotional support, practical advice, and encouragement, helping individuals and families feel less isolated and more empowered.

SBA’s peer support networks include both in-person and online support groups, as well as opportunities for individuals and families to connect with one another through social media and other platforms. These networks provide a sense of community and belonging, giving individuals and families the opportunity to share their experiences, learn from one another, and build lasting relationships.

Online Resources and Publications

The SBA offers a wide range of online resources, including articles, webinars, and videos on topics related to spina bifida. These resources cover everything from basic information about spina bifida to the latest advancements in medical care and treatment options. The SBA also publishes a quarterly magazine, Insights, which provides in-depth coverage of spina bifida-related issues, personal stories, and expert advice.

Community Workshops and Seminars

In addition to online resources, the SBA hosts workshops and seminars across the country. These events provide opportunities for individuals with spina bifida to learn about new medical treatments, connect with others who share similar experiences, and gain practical skills for managing their condition. The SBA also offers training programs for healthcare providers to ensure they have the knowledge and skills needed to provide high-quality care to individuals with spina bifida.

National Spina Bifida Awareness Month

Each October, the SBA spearheads National Spina Bifida Awareness Month, a campaign designed to bring attention to the issues faced by people with spina bifida. The campaign includes a range of activities, from social media outreach to community events, all aimed at increasing understanding and support for those with spina bifida.

Collaboration with Media and Healthcare Providers

The SBA also collaborates with media outlets, healthcare providers, and other organizations to spread awareness about spina bifida. These partnerships help ensure that accurate and helpful information about spina bifida reaches a broad audience, promoting early diagnosis and improving access to resources and support.

Support Services Offered by SBA

Peer Support Groups

One of the most valuable services offered by the SBA is its network of peer support groups. These groups provide a safe and supportive environment where individuals with spina bifida and their families can share their experiences, learn from others, and gain emotional support.

Importance of Peer Support

Peer support is crucial for individuals with spina bifida, who may feel isolated or face unique challenges related to their condition. Support groups offer a sense of community and belonging, helping participants cope with the challenges of living with spina bifida and build resilience.

Local Chapters and Virtual Meetings

The SBA's support groups are organized through its local chapters, with many groups meeting regularly to discuss topics of interest, share resources, and offer mutual support. In response to the COVID-19 pandemic, the SBA also began offering virtual support group meetings, making it easier for people to connect from anywhere in the country.

Helplines and Counseling Services

In addition to peer support groups, the SBA provides helplines and counseling services for individuals seeking assistance with spina bifida-related issues. These services are staffed by trained volunteers and professionals who can offer advice, answer questions, and provide referrals to other resources.

Accessibility and Availability

The SBA's helplines and counseling services are accessible to anyone, regardless of whether they are a member of the organization. This ensures that everyone who needs help with spina bifida can receive it, regardless of their location or financial situation.

Assistive Devices and Technology Resources

The SBA is also a valuable resource for information about assistive devices and other technologies that can help individuals with spina bifida. The organization provides guidance on selecting and using these devices, as well as information about financial assistance programs that can help cover the cost.

Types of Assistive Devices

Assistive devices for individuals with spina bifida include mobility aids, such as wheelchairs and braces, as well as devices that assist with daily living activities, like adaptive utensils and communication tools. The SBA provides detailed information about how these devices work, their benefits, and how to choose the right one based on an individual’s specific needs.

Keeping Up with Technological Advancements

As technology continues to evolve, the SBA ensures that its members have access to the latest information about new devices and innovations. This includes updates on emerging technologies, such as robotics and smart home devices, that can enhance independence and quality of life for individuals with spina bifida.

The Impact of the Spina Bifida Association on the Spina Bifida Community

Empowering Individuals through Education and Support

One of the most significant impacts of SBA’s work has been its role in empowering individuals with spina bifida through education and support. The organization’s educational resources, support programs, and peer support networks have provided countless individuals with the tools, information, and support they need to navigate the challenges of spina bifida and to live full, independent lives.

SBA’s focus on empowering individuals with spina bifida has helped to promote resilience, self-advocacy, and a sense of hope among the spina bifida community. The organization’s efforts have also helped to reduce feelings of isolation and to create a strong and supportive community for individuals with spina bifida and their families.

Advancing Public Awareness and Reducing Stigma

SBA has played a critical role in advancing public awareness about spina bifida and in reducing the stigma that often surrounds it. Through its public awareness campaigns, educational initiatives, and advocacy efforts, the organization has helped to change the way people think about spina bifida and to promote greater understanding and acceptance of individuals with spina bifida.

SBA’s efforts to raise public awareness have also helped to bring the challenges faced by individuals with spina bifida to the forefront of public consciousness, promoting greater investment in research, care, and support for the spina bifida community.

Influencing Public Policy and Advocating for Change

SBA’s advocacy work has had a significant impact on public policy and the rights of individuals with spina bifida. The organization’s efforts to influence legislation and policy have led to increased access to healthcare, improved insurance coverage for spina bifida-related treatments and services, and greater support for individuals with spina bifida in the workplace.

SBA’s advocacy efforts have also played a critical role in promoting disability rights and inclusion. The organization’s work to raise awareness about the challenges faced by individuals with spina bifida has helped to promote greater understanding and acceptance of these conditions and to ensure that individuals with spina bifida have access to the services and support they need to live full, independent lives.

Building a Strong and Supportive Community

SBA has played a vital role in building a strong and supportive community for individuals with spina bifida and their families. The organization’s peer support programs, educational events, and online forums have provided individuals with spina bifida and their families with a safe and supportive space to connect with others who understand what they are going through. SBA’s community-building efforts have helped to reduce feelings of isolation and to promote mental and emotional well-being.

SBA’s community-building efforts have also helped to create a network of support for individuals with spina bifida and their families, helping them to navigate the challenges of living with spina bifida and to achieve their goals. The organization’s commitment to fostering a sense of community is reflected in everything it does, from its educational programs to its advocacy and public awareness efforts.

Promoting Accessibility and Inclusion

SBA’s focus on promoting accessibility and inclusion has had a significant impact on the spina bifida community. The organization’s programs and services are designed to empower individuals with spina bifida to take control of their lives, to build resilience, and to achieve their goals. SBA’s emphasis on accessibility and inclusion has helped to promote a sense of hope and possibility for individuals with spina bifida, showing them that they can lead fulfilling, productive lives.

The Future of the Spina Bifida Association

Strategic Goals and Vision for the Future

As SBA looks to the future, the organization remains committed to its mission of improving the lives of individuals with spina bifida through advocacy, education, support, and public awareness. SBA’s strategic goals for the future include expanding its programs and services, increasing its impact through collaboration and partnerships, and continuing to advocate for the rights and inclusion of individuals with spina bifida.

SBA’s vision for the future is one where all individuals with spina bifida have access to the resources, support, and opportunities they need to live full, independent lives. The organization is committed to building on its legacy of service and advocacy, and to continuing its work as a leader in the spina bifida community.

Addressing Emerging Challenges and Opportunities

SBA is focused on addressing emerging challenges and opportunities in the spina bifida field. These include the growing demand for spina bifida services, the impact of technology on spina bifida care, and the need for more inclusive and culturally competent services. SBA is committed to staying at the forefront of these developments and ensuring that individuals with spina bifida have access to the resources and support they need to navigate these changes and to thrive in an increasingly complex world.

Expanding Community Outreach and Support

SBA is dedicated to expanding its community outreach and support efforts, with the goal of reaching more individuals with spina bifida and their families. The organization plans to continue growing its network of peer support programs, expanding its educational programs, and developing new resources and initiatives that meet the needs of the diverse spina bifida community. SBA’s outreach efforts are focused on building a strong and connected community that can advocate for its rights and interests.

Continuing to Influence Public Policy

SBA will continue to play a leading role in influencing public policy that affects individuals with spina bifida. The organization is committed to advocating for laws and policies that protect the rights of individuals with spina bifida, promote access to care, and ensure that individuals with spina bifida have the resources and support they need to live full, independent lives. SBA’s policy work will continue to focus on areas such as healthcare, insurance coverage, disability rights, and access to services.

Supporting the Next Generation of Advocates and Leaders

One of SBA’s key priorities for the future is supporting the next generation of advocates and leaders in the spina bifida field. The organization is committed to providing young advocates and leaders with the tools, resources, and support they need to make a meaningful impact on the lives of individuals with spina bifida.

SBA plans to expand its training programs, mentorship opportunities, and leadership development initiatives to ensure that the next generation of spina bifida advocates and leaders is prepared to carry on the work of the organization and to continue advancing the field.

The Spina Bifida Association has made a profound impact on the lives of individuals with spina bifida and their families since its founding in 1973. Through its advocacy, education, support, and public awareness efforts, SBA has empowered individuals with spina bifida to live fuller, more independent lives and has ensured that their rights and needs are recognized and respected.

The organization’s work has helped to advance public awareness about spina bifida, reduce stigma, and promote a more inclusive and supportive society for individuals with spina bifida. SBA’s ongoing efforts will continue to play a crucial role in shaping public policy, advancing spina bifida care, and providing essential support to individuals with spina bifida and their families.

As SBA looks to the future, it remains dedicated to its mission of improving the lives of individuals with spina bifida and to continuing its work as a leader in the spina bifida community. The organization’s ongoing efforts will continue to make a lasting impact on the lives of individuals with spina bifida for years to come, as it works towards a world where all people affected by spina bifida can live fulfilling, productive lives.